what to know
Information about PWS
A new diagnosis often comes with a flood of information, much of it focused on the most extreme challenges and limitations. It is important to know that the outdated statistics and clinical descriptions you may encounter do not define your child’s future.
Today, with early intervention, evolving medical treatments, and a dedicated community of support, the landscape of PWS has changed dramatically. Your child’s potential is not a fixed point; it is a journey of growth, and they have every opportunity to lead a life filled with connection, achievement, and joy. We are here to help.
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PWCF serves family and professional members throughout California, offering programs and services across our five service areas: education, support, advocacy, awareness, and research.