About PWCF
Supporting Californians with Prader-Willi syndrome since 1979
Founded by parents, PWCF serves over 850 families and professional providers across every county of California, providing education, support, advocacy, awareness, and research opportunities.
850+
Active Members
Our Story
PWCF was established in 1979 by parents determined to improve the lives of their children with Prader-Willi syndrome. What began as a small, grassroots effort has grown into a trusted, statewide network supporting individuals with PWS, their families, and the professionals who serve them. For almost fifty years, we’ve worked to expand access to knowledge, strengthen care systems, and build a more connected and informed community.
Our Mission
PWCF provides individuals with PWS, their families, and professionals with a network of education, advocacy, and support services throughout California.
Our Vision
Our vision is that persons with PWS will live a full life without limits.
PWCF Board & Staff
Vince Godfrey
Board President & Parent
Lisa Salazar
Board Vice President & Parent
Luis Prado
Administrative Director
We are in this together
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I honestly don't know what we would have done without the support, information and the endless openhearted caring.
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PWCF has given me the language to use with professionals, it is truly a gift. Nobody is promised tomorrow, stay strong and savor the moment.
Nonprofit Status
501(c)(3)
Federal Tax ID: 95-3480752