Online Support Sessions

Birth to Age 3 Years Sessions | 10:00 a.m. - 11:00 a.m. PST | Register
This group is for families who have an infant or toddler diagnosed with PWS. Topics discussed typically include feeding issues; supplements and growth hormone medication; early intervention therapies such as OT, PT, and speech therapy; behavior management strategies; and how to obtain/maintain Regional Center eligibility at age 3.

School Age (Ages 4 - 22) Sessions | 12:00 p.m. - 1:00 p.m. PST | Register
This group is for families who have a school-age child diagnosed with PWS. Topics discussed typically include how to manage unwanted behaviors; diet management; school-related services including IEP’s, how to get school-based therapies, high school transition programs; how to obtain Regional Center services; conservatorship; family and special needs trusts; how to obtain In-Home Supportive Services.

Adulthood (Ages 18+) Sessions | 2:00 - 3:00 p.m. PST | Register
This group is for families who have an adult diagnosed with PWS. Topics discussed typically include how to manage unwanted behaviors; family and special needs trusts, how to obtain SSI benefits; conservatorship; employment and day programs; and residential placement options and training.

Siblings Support Session (All Ages) | 5:00 p.m. - 6:00 p.m. PST | Register
This group is for siblings of all ages. Topics typically discussed during Sibling Support Sessions include the unique experience of being a sibling, lack of “fairness”, lack of freedom to bring friends home, feeling overlooked or neglected, being teased or bullied, feeling “too responsible”, fears for physical safety, fears of the future.

All groups live on Zoom. For links to meetings, please email us at info@pwcf.org