Online Share and Support Groups

Share advice and tell your story with other parents at the quarterly Share and Information Exchange groups happening Wednesday, October 25. These groups are a viable resource to expand your network and create meaningful connections with other parents affected by Prader-Willi Syndrome. You are never alone in your PWS journey. Use the links below to register today. PWS specialist Lisa Graziano, M.A, LMFT will be moderating each group.     Times: Group 1: Birth to Age 3 Years - 9 to 10 AM PST | Link to Register This group is for families who have an infant or toddler diagnosed with PWS. Topics discussed typically include feeding issues; supplements and growth hormone medication; early intervention therapies such as OT, PT, and speech therapy; behavior management strategies; and how to maintain Regional Center eligibility at age 3.     Group 2: School Age (Ages 4 - 22) - 12 to 1 PM PST | Link to Register This group is for families who have a child diagnosed with PWS age 4-22. Topics discussed typically include how to manage unwanted behaviors; diet management; school-related services including IEP’s, how to get school-based therapies, high school transition programs; how to get Regional Center services; and how to get In-Home Support Service.     Group 3: Adulthood (Ages 17+) - 3 to 4 PM PST | Link to Register This group is for families who have an adult diagnosed with PWS. Topics discussed typically include how to manage unwanted behaviors; special needs trusts and wills, conservatorship; employment and day programs; and residential placement options.