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About Luis

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So far Luis has created 90 blog entries.

PWCF’s 19th Annual Walking for PWS Events!

2022-08-30T15:37:14-08:00March 13th, 2019|

PWCF's 19th Annual Walking for Prader-Willi Syndrome  Click Here to visit our Walk Page! Southern California: May 19 at El Dorado East Regional Park - Golden Grove, Long Beach Northern California: June 1 at Little Marina Green, San Francisco San Diego Area: June 9 at NTC Park - Liberty Station, San Diego Virtual Walk Yard Sign: All

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Be a Shining Star in 2018

2022-08-30T15:37:31-08:00December 14th, 2018|

PWCF Wishes our Members, Professionals, and Supporters A Wonderful Holiday Season and a Happy New Year! Be a Shining Star this year to brighten the way to fulfill our mission; Support the 2018 Shining Star Campaign. Your tax-deductible gift means we can continue to provide: Parent Education Programs Professional Training Programs PWCF’s Camp Multidisciplinary PWS Clinics

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New Tools to Ensure Your Adult’s Safety!

2022-08-30T15:34:30-08:00December 11th, 2018|

New rules and regulations significantly affect adults with disabilities who receive Federal funding for residential services (group homes and supported living services), day programs, and vocational work sites. Arguably the most significant provision is that “individuals have freedom and support to control their schedules and activities and have access to food any time.” For persons with PWS this provision can

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New Tool To Help You Get School Services!

2022-08-30T15:34:35-08:00December 11th, 2018|

PWCF developed a new tool to help you get the supports and services your child needs to be safe and successful at school. Your IEP Team typically needs justification and documentation before it will provide the supports you're requesting, so PWCF developed a new Physician's Note Symptom & Treatment Checklist.  Completed by you and your child's physician, this

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2018 Conference Registration is Open!

2022-08-30T15:34:40-08:00August 21st, 2018|

Sign up today for our Annual State Conference taking place on Saturday, October 27th, 2018 in Sacramento.  This year's conference: Your California Community brings focus to the importance of connecting with your local PWS community. Working together we can create more understanding, more support, more hope, and better outcomes for every person in the life of someone

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PWCF’s 18th Annual Walking for PWS Events!

2022-08-30T15:34:45-08:00March 14th, 2018|

PWCF's 18th Annual Walking for Prader-Willi Syndrome  Click Here to vist our Walk Page! Southern California: April 29 at Griffith Park, Los Angeles Central California: May 5 at Dry Creek Park, Clovis Northern California: June 2 at Lagoon Park, San Rafael Virtual Walk Yard Sign: All Year Long!  Walk 2018 Brochure | Walk 2018 Flyer  

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New Product Announcement!

2022-08-30T15:34:55-08:00March 2nd, 2018|

We're pleased to announce a new video to give you the tools you need to reduce unwanted behavior common among persons with PWS. PWS - Behavior Management Strategies: Beyond the Basics This four hour training course presented by Lisa Graziano, M.A., former Executive Director of PWCF and mother of a young adult with PWS, covers topics including how

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HCBS Deadline Extended

2022-08-30T15:33:16-08:00May 10th, 2017|

Breaking News: FEDERAL GOVERNMENT ANNOUNCES EXTENSION TO COMPLY WITH HCBS FINAL RULE Marty Omoto of CDCAN reports "The federal agency that oversees Medicaid (called “Medi-Cal” in California) announced today that it will extend for all states the deadline to fully comply with the 2014 Medicaid Home and Community Based Services Final Rule.  Prior to the extension, the

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